Tag: Patient Advocacy
Jun
17
International FOP Association on Overcoming Clinical Trial Challenges in One-in-a-Million Disease
Fibrodysplasia ossificans progressiva (FOP) remains one of the most complex and devastating ultra-rare genetic disorders known to medicine. Affecting approximately one in a million people worldwide, the condition progressively transforms soft connective tissue into bone, leading to severe mobility limitations, respiratory complications and reduced life expectancy. Recent global estimates suggest that roughly 1,000 individuals are […]